I’m convinced that we must have a Potty Gremlin throwing its evil wrenches in the works of our Potty Training Journey. Yesterday I posted about my frustration with how I was treated about James’ allergies but I didn’t even get to write about the POOP conversation I had with the doctor.
Two weeks ago I was given the information of a woman whose 6yo boy experienced the similar sensory issues and the same problem my son has with potty training. I contacted her and she told me her story via email. I couldn’t believe it! Not only could she relate but she had found something that was successful. It was suggested to her that she try Biofeedback to help her son and her son has been fully bowel trained for weeks now!
I’ve used Biofeedback to help with bladder issue I sustained from a difficult pregnancy as well as a congenital issue. I was amazed out how this changed my life! It’s not often heard of or understood but it is the closest thing to a miracle drug you can get. Biofeedback uses electricity to help your muscles contract. It strengthens them and teaches your brain how to use them again. I can’t believe I havent thought of this before. If they can do it for your bladder, why couldn’t they do it for the bowel too?!
I brought this up to the Pediatrician yesterday after the whole allergy thing went down. I told him that after 18 months of constipation and impaction, 12 of which he’s been on Miralax daily, that I wanted to try the Biofeedback and get a referral to a Developmental Pediatrician. Here’s where the Gremlin comes in, the Doctor didn’t buy it. We are on the verge of finding something that could change our tender-hearted son’s life and give him some real victory and we get sidelined. *Deep Breath* So! He ordered an X-ray because he was positive James was impacted with stool. I agreed that he probably was, but I still insisted that the reason he is impacted is because he doesn’t know “how” to push his POOP out.
The doctor insisted that it was his Impaction causing the desensitization. I’ve done a lot of reading and understand the facts about Impaction and it symptoms. However, James is different and has had bowel problems from the day he was born. The withholding is a new thing and doesn’t explain all the constipation and Impaction from before that. I just know the cause of his problems is the lack of muscle control and I’m so tired of being given the run around.
His X-ray showed that he WAS impacted. Surpriiiiiise! not…. I AM surprised that a simple request for a referral for Biofeedback is treated like a request for a blood-letting. *whew* I just kept a smile on my face and said thank you and took my son for the X-ray thinking “I’ll just jump through the hoops so that I seem compliant and then they’ll give me what I want.” Wrong again. Instead they told me to give him Miralax… I’ve been giving him 1/2 Cap full of Miralax every day for the last 12 MONTHS. That’s not the answer to the long-term problem. Now we have to do this for another month before we can bring it up again.
I also have to wait until December 10th 2013 in order to see a Developmental Pediatrician. Not surprised by the wait, but the hope of James being potty trained is constantly being discouraged. We try to keep things light around here but he’s starting to be defeated by the potty. He doesn’t even want to sit on it or talk about it. I hate the bureaucracy of the system. “Do “A”, then do “B”, don’t forget “C D E F G” and when we run out of letters there’s an infinite amount of NUMBERS!” Can I please just get a referral?!?!?!
All of that whining to say this:
ASK YOUR PEDIATRICIAN ABOUT BIOFEEDBACK
LOL! I certainly hope you all have better success with your doctors. Please pray for me and James. We are so weary from this. I just need to be patient and calm, understanding and forgiving. ❤